A new group on Facebook

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A new group for HNPP in the UK has been started.

https://www.facebook.com/groups/hnppuk/

To quote from it’s tagline

To offer support and advice to suffer’s and families of HNPP and related Neuropathies

There are also several other National groups for HNPP on facebook, here’s a few that I know of

HNPP i Sverige

HNPP Finland

There are 2 well established groups for HNPP that have an international flavour,

https://www.facebook.com/groups/hnpphelp/

Hereditary Neuropathy and CMT

Group description for this last group is,

Hereditary Neuropathy with liability to Pressure Palsies.
A source for those of us with HNPP, or CMT (and family) to get in touch, discuss and compare symptoms.

 

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