A new group for HNPP in the UK has been started.
(Link Updated to new title)
To quote from it’s tagline
To offer support and advice to suffer’s and families of HNPP and related Neuropathies
There are also several other National groups for HNPP on facebook, here’s a few that I know of
There are 2 well established groups for HNPP that have an international flavour,
Group description for this last group is,
Hereditary Neuropathy with liability to Pressure Palsies.
A source for those of us with HNPP, or CMT (and family) to get in touch, discuss and compare symptoms.