A new group on Facebook

A new group for HNPP in the UK has been started.

HNPP AND CMT / NEUROPATHY SUPPORT

(Link Updated to new title)

To quote from it’s tagline

To offer support and advice to suffer’s and families of HNPP and related Neuropathies

There are also several other National groups for HNPP on facebook, here’s a few that I know of

HNPP i Sverige

HNPP Finland

There are 2 well established groups for HNPP that have an international flavour,

https://www.facebook.com/groups/hnpphelp/

Hereditary Neuropathy and CMT

Group description for this last group is,

Hereditary Neuropathy with liability to Pressure Palsies.
A source for those of us with HNPP, or CMT (and family) to get in touch, discuss and compare symptoms.

 

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