As a part of her continuing involvment with the Rare Disease org. Rhya Homewood has had an article published on the BBC Health website. This should really help to publicise what HNPP is and how it affects us. Her experiences seem to be very similar to many with HNPP, years of struggling with an illness that no one seems to understand. It often leads to much misunderstanding and misdiagnosis.
A big thumbs up to Rhya for her persistence.