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	<title>Jon&#039;s Slice Of Life</title>
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	<description>Life with HNPP</description>
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		<title>Jon&#039;s Slice Of Life</title>
		<link>http://jsol.wordpress.com</link>
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		<title>World COPD Day</title>
		<link>http://jsol.wordpress.com/2011/11/16/world-copd-day/</link>
		<comments>http://jsol.wordpress.com/2011/11/16/world-copd-day/#comments</comments>
		<pubDate>Wed, 16 Nov 2011 21:18:28 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[A Day in the Life]]></category>
		<category><![CDATA[asthma]]></category>
		<category><![CDATA[COPD]]></category>
		<category><![CDATA[lung disease]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=775</guid>
		<description><![CDATA[Chronic Obstructive Pulmonary Disease, COPD, sometimes called Chronic Obstructive Airway Disease in the UK. Although the main cause for COPD is smoking, there are other causative factors, industrial pollutants,  Alpha 1 antitrypsin deficiency, Bronchiectasis, and even some research which suggests that untreated chronic asthma can lead to irreversible airway changes and COPD. Today is GOLD [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=775&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
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			<media:title type="html">leaf27</media:title>
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		<item>
		<title>Paracetamol Metabolite (AM404)</title>
		<link>http://jsol.wordpress.com/2011/10/31/paracetamol-metabolite-am404/</link>
		<comments>http://jsol.wordpress.com/2011/10/31/paracetamol-metabolite-am404/#comments</comments>
		<pubDate>Mon, 31 Oct 2011 12:32:08 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[A Day in the Life]]></category>
		<category><![CDATA[General Chat]]></category>
		<category><![CDATA[Neuralgia]]></category>
		<category><![CDATA[cannabinoids]]></category>
		<category><![CDATA[drugs]]></category>
		<category><![CDATA[Omega Fatty Acids]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=767</guid>
		<description><![CDATA[Paracetamol, or to give it the US preferred name acetaminophen, has been in use for (guess work) probably a century or so. It has an awkward reputation, whilst it is commonly used for mild-moderate pain relief, and to some extent as an anti-pyretic, it has the unenviable reputation as being hepatotoxic in doses not that [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=767&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/10/31/paracetamol-metabolite-am404/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
	
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			<media:title type="html">leaf27</media:title>
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		<title>Mad Leg and Flu jab</title>
		<link>http://jsol.wordpress.com/2011/10/18/mad-leg-and-flu-jab/</link>
		<comments>http://jsol.wordpress.com/2011/10/18/mad-leg-and-flu-jab/#comments</comments>
		<pubDate>Tue, 18 Oct 2011 10:16:53 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[A Day in the Life]]></category>
		<category><![CDATA[flu]]></category>
		<category><![CDATA[HNPP]]></category>
		<category><![CDATA[injection site injury]]></category>
		<category><![CDATA[meralgia paresthetica]]></category>
		<category><![CDATA[palsy]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=761</guid>
		<description><![CDATA[Mad leg, it feels very angry this morning. I have a gnawing pain in my pelvis and sharp burning and electrifying pains in my hip, outer thigh and into the outer side of my right knee. Boy it&#8217;s distracting and agonisingly painful. Medication at the ready. I can&#8217;t think of any activity which may have [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=761&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/10/18/mad-leg-and-flu-jab/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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		<title>Head Colds and Rice Pudding</title>
		<link>http://jsol.wordpress.com/2011/10/14/755/</link>
		<comments>http://jsol.wordpress.com/2011/10/14/755/#comments</comments>
		<pubDate>Fri, 14 Oct 2011 20:38:29 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[A Day in the Life]]></category>
		<category><![CDATA[General Chat]]></category>
		<category><![CDATA[Meniere's]]></category>
		<category><![CDATA[cannabis]]></category>
		<category><![CDATA[foot drop]]></category>
		<category><![CDATA[hemp THC free]]></category>
		<category><![CDATA[HNPP]]></category>
		<category><![CDATA[vestibular]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=755</guid>
		<description><![CDATA[Well, I&#8217;m still feeling rather dizzy today, slightly less spinning millstone effects, but definitely off-balance and light-headed. I suppose it&#8217;s probably due to a head cold that I caught toward the end of last week. One of the worst colds I&#8217;ve had in a few years. I don&#8217;t go out socialising that often, but last [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=755&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/10/14/755/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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		<title>Dizzy Day</title>
		<link>http://jsol.wordpress.com/2011/10/13/dizzy-day/</link>
		<comments>http://jsol.wordpress.com/2011/10/13/dizzy-day/#comments</comments>
		<pubDate>Thu, 13 Oct 2011 13:21:52 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[A Day in the Life]]></category>
		<category><![CDATA[Meniere's]]></category>
		<category><![CDATA[balance]]></category>
		<category><![CDATA[foot drop]]></category>
		<category><![CDATA[Meniere's disease]]></category>
		<category><![CDATA[romberg]]></category>
		<category><![CDATA[sensory losses]]></category>
		<category><![CDATA[vertigo]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=752</guid>
		<description><![CDATA[Pretty bad today, feels like the old spinning millstone is back in charge. Any head movement is followed by a lagged heavy spin. I was trying out Romberg tests yesterday, as I felt that the combination of sensory loss / muscle weakness in feet and legs was contributing heavily to my balance problems. I can [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=752&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/10/13/dizzy-day/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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			<media:title type="html">leaf27</media:title>
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		<title>Another Awareness Week &#8211; Meniere&#8217;s and Balance Disorders</title>
		<link>http://jsol.wordpress.com/2011/10/11/another-awareness-week-menieres-and-balance-disorders/</link>
		<comments>http://jsol.wordpress.com/2011/10/11/another-awareness-week-menieres-and-balance-disorders/#comments</comments>
		<pubDate>Tue, 11 Oct 2011 09:43:09 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[A Day in the Life]]></category>
		<category><![CDATA[General Chat]]></category>
		<category><![CDATA[HMSN]]></category>
		<category><![CDATA[Meniere's]]></category>
		<category><![CDATA[awareness week]]></category>
		<category><![CDATA[balance]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=734</guid>
		<description><![CDATA[The Meniere&#8217;s Society in the UK is the primary source of information for those afflicted by Balance disorders. Not only Meniere&#8217;s disease, but as can be seen from their webpage any disorder affecting the balance organ of the inner ear. I&#8217;m not currently a member, but I did find the information they provided extremely useful [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=734&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/10/11/another-awareness-week-menieres-and-balance-disorders/feed/</wfw:commentRss>
		<slash:comments>7</slash:comments>
	
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			<media:title type="html">leaf27</media:title>
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		<item>
		<title>HMSN &#8211; CMT inc HNPP awareness pic/poster mk.2</title>
		<link>http://jsol.wordpress.com/2011/09/25/hmsn-cmt-inc-hnpp-awareness-picposter-mk-2/</link>
		<comments>http://jsol.wordpress.com/2011/09/25/hmsn-cmt-inc-hnpp-awareness-picposter-mk-2/#comments</comments>
		<pubDate>Sun, 25 Sep 2011 11:51:37 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[Charcot-Marie-Tooth]]></category>
		<category><![CDATA[HMSN]]></category>
		<category><![CDATA[HNPP]]></category>
		<category><![CDATA[CMT]]></category>
		<category><![CDATA[hmsn]]></category>
		<category><![CDATA[poster]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=727</guid>
		<description><![CDATA[After a quick fiddle with GIMP2 (a wonderful open source paint program), here&#8217;s the first attempt at a Name/label poster for HMS/CMT/HNPP awareness poster&#8230;<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=727&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/09/25/hmsn-cmt-inc-hnpp-awareness-picposter-mk-2/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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			<media:title type="html">leaf27</media:title>
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			<media:title type="html">Hmsn_name_poster2</media:title>
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		<item>
		<title>CMT Awareness Month</title>
		<link>http://jsol.wordpress.com/2011/09/25/cmt-awareness-month/</link>
		<comments>http://jsol.wordpress.com/2011/09/25/cmt-awareness-month/#comments</comments>
		<pubDate>Sun, 25 Sep 2011 09:07:34 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[HMSN]]></category>
		<category><![CDATA[HNPP]]></category>
		<category><![CDATA[awareness month]]></category>
		<category><![CDATA[CMT]]></category>
		<category><![CDATA[hmsn]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=721</guid>
		<description><![CDATA[This year the CMT support groups in the US and the UK, and presumably other countries, have designated the month of september as Awaweness month. I know it&#8217;s nearly over, but I wanted to display a profile picture on facebook (and elsewhere) to help pulicise this. I decided to make my own pic as most [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=721&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/09/25/cmt-awareness-month/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
	
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			<media:title type="html">leaf27</media:title>
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		<item>
		<title>10/8/11 &#8211; Mobility crisis looming</title>
		<link>http://jsol.wordpress.com/2011/08/10/10811-mobility-crisis-looming/</link>
		<comments>http://jsol.wordpress.com/2011/08/10/10811-mobility-crisis-looming/#comments</comments>
		<pubDate>Wed, 10 Aug 2011 22:57:31 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[A Day in the Life]]></category>
		<category><![CDATA[breathless]]></category>
		<category><![CDATA[foot drop]]></category>
		<category><![CDATA[mobility aids]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=714</guid>
		<description><![CDATA[Symptoms have got quite a bit worse over the last few days, and I can&#8217;t think of anything that has precipitated this change. I woke yesterday and my first steps were difficult, my left calf felt as if I had had a night of severe cramp, but I hadn&#8217;t. Lower leg is really stiff and [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=714&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/08/10/10811-mobility-crisis-looming/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
	
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			<media:title type="html">leaf27</media:title>
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		<title>HNPP genetic testing &#8211; The diagnostic process. -( No Table)</title>
		<link>http://jsol.wordpress.com/2011/07/19/hnpp-genetic-testing-the-diagnostic-process-no-table/</link>
		<comments>http://jsol.wordpress.com/2011/07/19/hnpp-genetic-testing-the-diagnostic-process-no-table/#comments</comments>
		<pubDate>Tue, 19 Jul 2011 18:48:22 +0000</pubDate>
		<dc:creator>leaf27</dc:creator>
				<category><![CDATA[HNPP]]></category>
		<category><![CDATA[diagnosis]]></category>
		<category><![CDATA[Mutation database]]></category>

		<guid isPermaLink="false">http://jsol.wordpress.com/?p=705</guid>
		<description><![CDATA[Depending on where a person is diagnosed, and the type of health care that they receive, genetic testing for HNPP can be highly variable. Not all labs do all possible tests for the known mutations that cause the HNPP phenotype. The following link is to the Molgen Database for Inherited Peripheral Neuropathies, by selecting look [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=jsol.wordpress.com&amp;blog=3517342&amp;post=705&amp;subd=jsol&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://jsol.wordpress.com/2011/07/19/hnpp-genetic-testing-the-diagnostic-process-no-table/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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			<media:title type="html">leaf27</media:title>
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